AELALD is made up of patients, family members and friends of patients affected by LAL-D. Its creation is the result of the need to organize and join efforts given the low number of diagnosed cases based on possible prevalence.

· Representative body:

President: Eduardo López

Secretary: Sara Salinas

· The existence of this Association has the following purposes:

a) Attend, gather and guide people affected by the disease, their family, friends and any other interested person (personally or professionally).
b) Manage and help achieve treatments for said disease.
c) Dissemination of said disease to the various sectors that may be involved in the diagnosis and research of lysosomal diseases.
d) Support, promote and encourage research into this disease and/or lysosomal diseases.
e) Obtain guidance and support from professionals in medicine, psychology, social sectors, etc.
f) Achieve awareness among public opinion and both national and international organizations or institutions.
g) The association may join or establish collaboration agreements with other associations and federations (national and/or international) of this pathology or other similar ones. Likewise, it may join rare disease entities, given the low prevalence of the disease.