The EURORDIS Open Academy School on Medicines Research & Development aims to provide rare disease patient advocates with the knowledge and skills needed to become experts in medicines research and development.

Over 20 experts, from across all rare disease stakeholders, deliver the training each year. The topics covered include clinical trials methodology, clinical research, ethics in medicines development, regulatory affairs, health technology assessment and marketing authorisation.

Eduardo López, president of the Spanish Association for Lysosomal Acid Lipase Deficiency (AELALD) has taught the course and has obtained the badge.