The Catalan Federation of Malalties MInoritàries (FECAMM) commemorated its 20th anniversary on June 3, 2024 at the CaixaForum Barcelona, ​​with the participation of Anna Erra, president of the Parliament of Catalonia, and other authorities.

The event included presentations and discussions that highlighted the importance of sharing knowledge and experiences to advance the treatment of rare diseases, given among others by Susan Webb, Anna Aran and Jordi Duran, whose work was recognized.

The event, led by Francesc Triola, encouraged reflection on topics such as neonatal screening and gene therapies.
The need to connect patients, families, health services and research was emphasized, highlighting the Patient73 platform as an essential tool.

Iolanda Arbiol presented the Dr. Torrent-Farnell Foundation, highlighting her work in its training.

Núria Terribas, director of the Víctor Grífols i Lucas Foundation, has highlighted the relevance of Bioethics in the context of rare diseases.

Anna Erra thanked FECAMM for its work, highlighting the importance of the associative world in supporting families.

The work carried out by the people who have been part of the federation during these 20 years of activity was remembered.

AELALD attended the event and its work in the entity, which it has been carrying out since 2019, was recognized.

It was concluded that it is crucial to recognize the effort made and use technologies to integrate resources, knowledge and services.